During the first month of being ill, the pain was unbearable and the hospital visits became extremely tedious, so I’m rather grateful for the position I’m currently in. I can walk more freely with my crutches, spend at least 9 hours of the day out of bed and can put my clothes on without having to sit down (well, most of the time). It really is the small things that count!
My arthritis is still very much alive, however, and I’m having to battle the physical and emotional consequences of that daily. I’m taking an average of 18 pills per day and I’m seriously over it. The medication I’m on causes horrible side effects, where it becomes harder to function and I’m currently living every day as it comes, not knowing what part of my body will hurt next or whether or not I’ll wake up with a headache and feeling nauseous.
Becoming ill has certainly changed my life. With the surplus hours I’ve spent lying in bed, I’ve had time to reflect on my life, thinking about who and what is important to me. I’m having to live life at a slower pace as well and take things as they come. This illness has certainly tested my patience and the patience of those around me.
I recently asked to change roles at my work. It’s a decision I didn’t make lightly, but one that I think is best for my health and best for those who work with me (especially the ones who have been helping out with tasks I’m unable to perform at the moment). I am so grateful for my workplace. The organisation I work for, along with those I work with, are amazing. Everyone has been immeasurably compassionate and flexible with me, making sure I put my health first where needed, being understanding of my shortened hours and finally, my request for a role change has been accepted.
I am also so grateful for my friends. ‘Hard times will always reveal true friends’ is a saying that rings quite true at the moment. It’s funny how something like this would shed so much light on the relationships that I have, making some stronger and some not so much. I’m so grateful for having friends who check up on me, pick me up because I still can’t drive yet, make plans with me even though I’m limited in what I can do and generally show that they care about my wellbeing.
And finally, I am so grateful for my family. I wouldn’t know what to do without them! They have been so supportive, especially my mum who drives me everywhere, rubs my sore joints and cooks me delicious food. It’s hard to live with someone who is unable to function completely without help and I appreciate all the extra effort my family make to help make my life a bit easier.
My hope is that as these negative side effects are emerging, that underneath, slowly the life-changing positive side effects are working their magic too. I’ll be seeing my rheumatologist in about a month, and she’ll be able to tell me whether or not things are truly improving!
I’ll finish with this:
You just do it. You force yourself to get up. You force yourself to put one foot before the other, and God damn it, you refuse to let it get to you. You fight. You cry. You curse. Then you go about the business of living. That’s how I’ve done it. There’s no other way. – Elizabeth Taylor